|Rocking the helmet. I kinda like it white.|
|Bath time boy, no helmet.|
I have thought a lot about this situation, and I really have come to view it as a blessing. Ezra is the happiest and sweetest baby, and I get to interact with him every day. I get to serve him. I get to be his mother. He gets to teach our family about empathy and compassion and patience. If it turns out that he can’t speak well, we will all get to learn sign language or another way to communicate. Ezra's name means "help"-- he will need help and he will be a tremendous help to others. We are the lucky ones who get to be with him the most. There was a 1 in several million chance that I would have a baby with 13q deletion, and I won the lottery. I would not trade Ezra for the world.
(PS I need to say that many people have prayed and fasted for Ezra and for our family, and we are so grateful. We are humbled and we love you all.)